Fingers Crossed....

I just submitted a request at The Prayer Child Foundation to help with some of the costs of an Ipad for Vinny.  Through listening to some of my HoPE family, Babies With iPads, and doing a little research on my own, I really feel that this would be a beneficial device for Vinny. 

Since I know they have funded grants for Ipads in the past, I'm keeping my fingers crossed and HoPEing that Vinny gets his grant too.

New Gear...Approval Pending

We had a rep come out to our house the other day to fit Vinny for some adaptive equipment.  Vinny is growing out of many of his seating chairs, so it is now time to utilize our resources and get Vinny the equipment he needs.  This process, however, will take about 60-90 days to get approved through Medicaid and ordering.  Hopfully by the end of spring Vinny will have his new gear.

I never leave home without my stroller for Vinny, so first on the list is the Kimba Pediatric Wheelchair.  This will certainly come in handy for Vinny because it will provide the support and comfort he needs and deserves.  What I liked about this chair is that it will grow with him for the next several years. Vinny and I were able to try this one out and with all the options it comes with I thought this would work best for him. 

We will be getting the color shown!

Also on the list is a bath chair.  We chose the Otter Bathing System.  I haven't had a chance to try something like this out for him, so I am keeping my fingers crossed on this one and hoping that it works out for us. 



For all the HPE mommies reading this, any suggestions or ideas would be appreciated.  What are your favorite products that worked for your child?  They may help out Vinny too.

Smarty pants!

I have to say, Vinny has the best therapists ever!

Yesterday his PT and Early learning teacher where at the house working with Vinny.  He did great!  His teacher told me that Vinny did so well picking matching pieces...(such as a pig head and a pig butt).  She said that Vinny completely understands what needs to be done, and it only takes one time to show him.  What a smarty!!!  Good work Vinny!

It's been a year for Vinny

Gosh!  It has been a very long time since I have written on this blog.  I am not a very confident writer, which is probably why, but either way, it has been a while. 

Since my last post, we have come upon many "anniversaries" in regards to Vinny.  Here are a few....

On December 7th Vinny celebrated his 2nd birthday.  This was also the 1 year anniversary of the day he went in for his MRI to find out why he was not developing normally.  You can see last years flash back post here.  Needless to say, his 2nd birthday by far surpassed his 1st. 

Just 2 days later was also the 1 year anniversary of the day the once scary 17 letter word forced its way into all of our vocabularies.  Holoprosencephaly....ahhh how a word can change your life and some of the peoples lives around your forever.  I still remember that call like it was yesterday, Vinny's neurologist giving me his diagnosis.  I will NEVER forget that day...ohh what a sad day.  I was devastated.  Here is last years post.  I think back at how scared I was for Vinny.  One year later, those fears are not there.  Vinny is the happiest and healthiest little boy!!!

Finally, as of this month, Vinny has officially been in Physical and Occupational therapy for a year.  I can't believe the progress he has made.  He went in to his first appointment as a tight fisted (literally), tense, screaming little boy....and now he is none of that!  His arms are always flailing about, he's sitting almost on his own, bearing all his weight on his legs, and so much more!  A year ago, I never thought he would be doing as much as he is doing now.  GREAT WORK LITTLE GUY!!!  We did make a few changes too.  He is still at Childrens Hospital for his OT, but now takes PT from home, along with is education teacher and soon speech therapy.  Certainly makes my life much easier!

On Hiatus.....

Okay, so as you can see, it has been a while since I have posted a new entry.  This entry is to officially inform you that I am on a blogging hiatus...(not that I wrote that often anyway.)

Life is a little busy these days, especially with spending any free time on my own school work, so just won't have the time.

I hope that when I return, I will have a few good entries for all of you.

Ciao for now!

Family Vacation

This past weekend we spent a few days in Wisconsin Dells at the Wilderness Resort.  It was a lot of fun.  Jake loved the water and all that they had for him to do.  Vinny had lots of fun too.  The very first ride we went on was a raft ride through a dark and winding tube.  Once we got to the end where there was light, I looked at Vinny and he is sitting with his arms straight out in front of him and his mouth wide open.  He loved it!!! 

It was great for all of us to get away as a family and have a little fun.  Here are a few photos of our family vacation.  Of course, no photos of me....again!  :)

First day of school!

Last week Wednesday Jake started 4k.  He had a great time and almost started crying when he had to leave.  He was totally ready for school and we had no problem whatsoever leaving eachother behind for a few hours.

Here are a few pics of Jakes first day............