tag:blogger.com,1999:blog-757634231772437200.comments2017-12-06T03:46:22.379-06:00Living with HoPE!!Unknownnoreply@blogger.comBlogger20125tag:blogger.com,1999:blog-757634231772437200.post-86578340738154573302011-03-29T20:59:46.456-05:002011-03-29T20:59:46.456-05:00I love it! I become more excited for my children&...I love it! I become more excited for my children's birthdays than my own. ;-) I cannot believe our boys will be 5 this year-I remember bumping into you at Starbucks and we were both pregnant!! Have fun planning!!<br />-Amy EisenhutAnonymoushttps://www.blogger.com/profile/07474177644897535884noreply@blogger.comtag:blogger.com,1999:blog-757634231772437200.post-85085254952126198802011-03-11T10:04:33.555-06:002011-03-11T10:04:33.555-06:00This is hilarious!This is hilarious!Donnahttps://www.blogger.com/profile/13013603505012652786noreply@blogger.comtag:blogger.com,1999:blog-757634231772437200.post-7265585684837758482010-09-14T09:52:51.107-05:002010-09-14T09:52:51.107-05:00Hey Gina! Looks like such fun... I look forward to...Hey Gina! Looks like such fun... I look forward to following along as you blog your family adventures! Say hi to everyone for us!<br />Blessings.<br />j<br />www.gfinkfamily.blogspot.com<br />Beneath the Acacia TreeAnonymoushttps://www.blogger.com/profile/05102019542645669174noreply@blogger.comtag:blogger.com,1999:blog-757634231772437200.post-65143944264803563962010-08-18T19:36:02.272-05:002010-08-18T19:36:02.272-05:00HI Gina,
I was moved to tears by this video! Tha...HI Gina,<br /><br />I was moved to tears by this video! Thanks for sharing this. I hope you and Vinny are well! It was great to meet you at the HPE conference!<br /><br />Sarah, mom to Lilawallslyndellhttps://www.blogger.com/profile/17533667882475711415noreply@blogger.comtag:blogger.com,1999:blog-757634231772437200.post-59622570870645252772010-07-25T14:37:37.550-05:002010-07-25T14:37:37.550-05:00I am so happy for you and Vinny Gina! You guys wil...I am so happy for you and Vinny Gina! You guys will have fun meeting so many families that you have so much in common with! I can't wait for your updates!Shannonhttps://www.blogger.com/profile/00222201758071966920noreply@blogger.comtag:blogger.com,1999:blog-757634231772437200.post-78278840808929052812010-07-17T11:35:29.842-05:002010-07-17T11:35:29.842-05:00Love this idea...might just have to "borrow&q...Love this idea...might just have to "borrow" it for our blog!Bunnyhttps://www.blogger.com/profile/14935451776140417872noreply@blogger.comtag:blogger.com,1999:blog-757634231772437200.post-73974271773256214712010-07-07T15:06:28.916-05:002010-07-07T15:06:28.916-05:00Love your new blog
To cute
Your little man is even...Love your new blog<br />To cute<br />Your little man is even cutier<br /><br />Great job on it :DAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-757634231772437200.post-32890473000762471442010-05-02T12:47:45.696-05:002010-05-02T12:47:45.696-05:00How exciting that you not being there for the ther...How exciting that you not being there for the therapy worked!! I know you were very concerned about it and you found the trick! So happy for you about that! <br /><br />The family picture is ADORABLE. How fun to get that done!Shannonhttps://www.blogger.com/profile/00222201758071966920noreply@blogger.comtag:blogger.com,1999:blog-757634231772437200.post-4550900769579823012010-04-24T09:35:54.579-05:002010-04-24T09:35:54.579-05:00Isn't it wonderful when something like that, s...Isn't it wonderful when something like that, such as a bulldozer, is just a machine to us adults, but to children it's such amazement to them. Anything to make a little one's face light up is worth it to me. Looks like it was a walk well worth while Gina!<br /><br />AngieAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-757634231772437200.post-56509987198603721582010-04-23T16:37:58.032-05:002010-04-23T16:37:58.032-05:00Dylie does the same thin with her feet. We need to...Dylie does the same thin with her feet. We need to get serious about it and talk to the ortho at her next Spina Bifida Clinic. Does he mind them? They look super cute... =)Shannonhttps://www.blogger.com/profile/00222201758071966920noreply@blogger.comtag:blogger.com,1999:blog-757634231772437200.post-88562652957974032352010-04-23T13:48:45.873-05:002010-04-23T13:48:45.873-05:00Cute family Gina! As for the braces, I hope its co...Cute family Gina! As for the braces, I hope its comfortable for the lil guy. I read about the cast and had awful flashbacks of when I shattered my foot and took a skillsaw and cut it off 3 times and the DR. put a pink cast on me.:( <br />Have a good day! <br />NicAnonymoushttps://www.blogger.com/profile/02391463262361229224noreply@blogger.comtag:blogger.com,1999:blog-757634231772437200.post-17848204588397528522010-04-15T14:41:17.665-05:002010-04-15T14:41:17.665-05:00Thanks Shannon. I will try that!Thanks Shannon. I will try that!Gina Khttps://www.blogger.com/profile/04864668024113053976noreply@blogger.comtag:blogger.com,1999:blog-757634231772437200.post-50779668513074640832010-04-15T14:10:35.644-05:002010-04-15T14:10:35.644-05:00So cute! I am so excited for Duncan to like Easter...So cute! I am so excited for Duncan to like Easter! FTI - If you want the photos to line up top to bottom (like mine), when the box comes up to upload the photos click on the one on the far left (no format) that should do it!Shannonhttps://www.blogger.com/profile/00222201758071966920noreply@blogger.comtag:blogger.com,1999:blog-757634231772437200.post-80738915423532094302010-04-04T03:03:33.916-05:002010-04-04T03:03:33.916-05:00This is beautiful.This is beautiful.Kelli Riollohttps://www.blogger.com/profile/05059892929815962881noreply@blogger.comtag:blogger.com,1999:blog-757634231772437200.post-39726922171042907932010-03-14T13:38:41.590-05:002010-03-14T13:38:41.590-05:00Thanks for posting this! I found so much cool info...Thanks for posting this! I found so much cool info on their site. I have signed up for the newsletter, as well. :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-757634231772437200.post-22498808955288885722010-02-26T10:56:07.972-06:002010-02-26T10:56:07.972-06:00Marcela, Thank you for that explanation. That mak...Marcela, Thank you for that explanation. That makes much more sense to me. I did think of it as another diagnosis for Vinny, but now that you explain it like that, I understand.<br /><br />By the way, I love your blog and Nathan is so adorable. He reminds me of Vinny sometimes when I look at his pictures.<br /><br />Thanks again,<br />GinaGina Khttps://www.blogger.com/profile/04864668024113053976noreply@blogger.comtag:blogger.com,1999:blog-757634231772437200.post-80428508361034317532010-02-25T23:45:58.240-06:002010-02-25T23:45:58.240-06:00Hi Gina,
I am so excited to hear how well Vinny i...Hi Gina,<br /><br />I am so excited to hear how well Vinny is doing! I hope he continues to defy the odds!<br /><br />I also wanted to mention that HPE is really under the classification of CP. It's not that Vinny has CP AND HPE, it's just that CP is a general umbrella term for movement disorders, and HPE often is accompanied by problems with movement (spasticity, difficulty walking, etc). So don't feel that this is ANOTHER diagnosis for Vinny to carry around. The reason the doc mentioned "insurance" is that almost nobody has heard of HPE, but everyone has heard of CP. So if you are trying to fight for a wheelchair, for example, and you tell the insurance that Vinny has HPE they may not understand exactly what that means, but if you say quad CP then they instantly understand.<br />I am not a big believer in labels but I use the CP label a lot more than the HPE label as it's just easier to explain to people.<br />Best of luck with the construction and school work!<br />Marcela, Nathan's mom<br />www.prayfornathan.orgPrayforNathan.orghttps://www.blogger.com/profile/12226373977189001664noreply@blogger.comtag:blogger.com,1999:blog-757634231772437200.post-29130853171080082112010-01-30T11:03:51.222-06:002010-01-30T11:03:51.222-06:00This is so cute! I've been planning on doing s...This is so cute! I've been planning on doing something like that for Sydney and Abby, when they turn one! I just saw your post on the HPE group about runs/walks. I believe there is one in Indianapolis. I think I saw it on the FFH website. I think it would be great if more of us started runs/walks in our local areas. Just think how many people would learn about HPE!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-757634231772437200.post-41733360826820044912010-01-10T17:37:27.278-06:002010-01-10T17:37:27.278-06:00Just saw your note Gina - Isn't this WONDERFUL...Just saw your note Gina - Isn't this WONDERFUL! I read it over all the time and still get a little teary. We have met the most wonderful people and seen so many miracles! Holland is an amazing place isn't it?Shannonhttps://www.blogger.com/profile/00222201758071966920noreply@blogger.comtag:blogger.com,1999:blog-757634231772437200.post-59130363758753549912010-01-02T15:07:37.286-06:002010-01-02T15:07:37.286-06:00Gina,
I'm glad to hear you are beginning to a...Gina,<br /><br />I'm glad to hear you are beginning to accept Vinny's diagnosis a little more each day. It will get easier. I have an entry on my blog that helped us understand all of the feelings and emotions we have experienced, since we first learned of Abby's diagnosis. This is the link, if you are interested... http://carlyandjay.wordpress.com/2009/11/01/dealing-with-disability/<br /><br />We still have hard days, and still occasionally wonder why this happened. However, for the most part, we've accepted it. It just takes time. <br /><br />I am so glad you joined the group! I look forward to reading your blog! I am going to add you to my Blogroll, if you don't mind. :)<br /><br />CarlyAnonymousnoreply@blogger.com