Although times will probably get rough, I am accepting the fact that Vinny has HPE a bit more. I think Tony is feeling the same way. It truely a disorder that is day by day. So far (knock on wood) Vinny has been doing great. No medical issues have arised which I am very greatful.
I have found a few great sites on HPE that have helped alot. Great information and great support. I have listed a few of those sites on this blog. In July there is an HPE conference in Maryland that Tony and I would love to attend. Hopefully we will be able to make it. It would be a great opportunity to learn as much on HPE as possible in hopes to help Vinny out in the future.
I have found a few great sites on HPE that have helped alot. Great information and great support. I have listed a few of those sites on this blog. In July there is an HPE conference in Maryland that Tony and I would love to attend. Hopefully we will be able to make it. It would be a great opportunity to learn as much on HPE as possible in hopes to help Vinny out in the future.
Gina,
ReplyDeleteI'm glad to hear you are beginning to accept Vinny's diagnosis a little more each day. It will get easier. I have an entry on my blog that helped us understand all of the feelings and emotions we have experienced, since we first learned of Abby's diagnosis. This is the link, if you are interested... http://carlyandjay.wordpress.com/2009/11/01/dealing-with-disability/
We still have hard days, and still occasionally wonder why this happened. However, for the most part, we've accepted it. It just takes time.
I am so glad you joined the group! I look forward to reading your blog! I am going to add you to my Blogroll, if you don't mind. :)
Carly